Dan's liver transplant

Hi my name is Nicky and I’m Danny’s wife.

The reason I am writing this this to give you my side of the story as everyone seems to forget there is more than the person going though this there is always someone else that is having to go though this too so this is my side of what has been going on .

I started to hand write this as this is better for me, so now I am typing this all out. ( I know more work for me but it’s just me)

So this all started back in 2022 Christmas where we thought Danny was consitpated so we called the doctors and explained this and he had tried all the normal methods but that didnt work. So by now its January 2023 and sometime in Jan we went to A&E and we sat for hours on end we were seen and we decided it best for me to go home and get some sleep as there was nothing I could do. It would be a ruff few days I think he spent the week on Cassio ward in Watford General where they found the cause of the bloting and this is where the long journey starts. Many drains and hospital stays.

Danny has had 2.5 TIPS and we were waiting for the 3rd at the time I first wote this. The 1st one didnt work well 2nd failed (thats th 0.5 mone) so the 2nd full TIPS worked and the drains after this one were every 3 weeks and not evry 2 weeks. But because the 2nd TIPS worked but not as well as we hoped Danny was still producing more than the day unit could drain so one more stay in hospital to get fully drained and back to 2 weekly drains.

Over the last year we have been to The Royal Free a few times mainly to have the TIPS done and to talk about the TIPS. But this year back in January we sae Dr Patch’s team and this is where it was decided that we needed to head down the transplant routefor liver and possibly kidney. We kind of knew this was on the way as the liver nurse in Watford had talked to Danny about this at one of the visits when he was having a drain. She used to work on the transplant team so could answer a few questions which was really nice.

Well that conversation hit really hard to hear it from the doctor in person.

We have had a few more drains since then but 3rd March i dropped Danny off at The Royal Free in the Pears building as tomorrow he starts all the tests to see if he can cope with a transplant and to see how his general health is.

I have to say the Pears building is very nice its just like a hotel and not feeling like a building connected to a hospital, so please dont worry when your time comes.

So all week I have been feeling OK about next week but now I have left Danny there I am worried and anxious yes I know this is all normal, it’s the not knowing what will happen and what the out come will be I just hate not knowingand not in control BUT we knew this anyway and by we I mean me and this is something I am working on and this blog will be one way of dealing with things.

So for now I’m done for tonight I have work in the mornin g and need to get ready.